Run for a Cystic Fibrosis Cure!

Dit is de actie van Chantal Joubert
Meer info
429 totaal opgehaald 150 Mijn doelbedrag

Hi! My name is Chantal Joubert and I run barefoot. I have, together with my husband Hans (who will also be running), two daughters (Émilie and Marieke) with cystic fibrosis. Cystic fibrosis is a progressive, genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. Our CF story is one of ups and downs, seasoned with determination and commitment to lead a normal full life. ;) Our daughters have the privilege of being able to benefit from the first revolutionary drug for CF: Kalydeco. However, this revolutionary drug neither cures CF nor is suitable for all CF patients. Continuing research to develop more such drugs is desperately needed. This is why I keep on running. Support by sharing and donating through my link.

Bekijk alle donateurs
35 02-11-2018 | 20:57 k. friendly nice neighbours
25 29-09-2018 | 20:11 Cor
25 24-09-2018 | 00:26 Samantha
50 22-09-2018 | 21:04 Loes Ha Chantal, geweldig dat je meeloopt. Zet 'm op morgen! Loes
15 22-09-2018 | 20:01 Josephine